Using Research to Support Caregivers of Children With Cancer

My internship is in the Division of Pediatric Hematology-Oncology at Riley Hospital for Children with Dr. Emily Mueller and her research assistant, Anneli Cochrane. One of the major projects we have been working on is the development of an mHealth (mobile Health) tool, COPE360, for caregivers of children with cancer to manage their child’s condition from home. Alongside this, we worked on two other projects. These included taking a second shot at a medical publication and writing a survey designed for primary caregivers of children with cancer. Some of the work I have done is abstract data from patient medical records, perform and write reviews of the medical literature, read medical publications to gather ideas, and code interviews that occurred with caregivers of children with cancer using the app during the alpha-testing phase. Currently, the app is about to undergo it’s second phase of testing, results for the publication are being written, and final edits to the survey are being made before it is distributed. All of the work we have done pertains to caregivers of children with cancer to better understanding the obstacles they face so we can make this life-changing event more manageable.

Supervisor: Emily L. Mueller
Department: Pediatrics, Division of Pediatric Hematology Oncology